Aims
SCPs have been internationally endorsed as an important tool to support enhanced post-treatment survivorship care. To support broad implementation of SCPs we investigated survivors’ preferences regarding SCPs. The aims of the study were to determine survivors’ preferences regarding the most valued information elements of a SCP and preferred delivery format. We also sought to determine intended use of a SCP and whether there were groups who felt they did not need a SCP.
Methods
The study was conducted at a single site. Eligible patients from 10 clinical services generally up to 12 months following end of treatment, were approached. A purpose designed survey assessed survivors’ intended use of a SCP and preferences regarding format and content. Intended minimum sample size was 200.
RESULTS:
230 surveys were returned (RR 68%). 56% had completed treatment within 6 months, with 10% receiving ongoing treatments. Most (82%) had not received a SCP. 98% desired further information. Most common information requested was: ‘a list of symptoms to watch out for and report’ (76%), ‘summary of treatment received’ (70%), ‘plan for follow-up appointments’ (70%), and ‘things I can do to look after myself’ (67%). Most common reasons for wanting a SCP included: ‘a record of cancer treatment’ (63%), ‘a reminder of things to do to look after myself’ (57%) and ‘to help me understand my cancer experience’ (56%). 52% would share the information with their GP. 91% indicated a preference for paper-based resources. Both brief (36%) and detailed versions (42%) were supported. 55% preferred delivery during a face-to-face discussion with a health professional.
CONCLUSION:
While similar to international findings, results suggest alternate ways of providing information survivors desire. Most desired elements have been defined. Flexible approaches to SCP interventions are warranted. Impressing the value of sharing SCPs with GPs is recommended.