Background: In adolescent and young adult (AYA), the effects of cancer and treatment on fertility can be a continuing source of distress. Young people with cancer rely upon clinicians to provide information and advice regarding fertility preservation options.
Objectives: This study aimed to explore health professionals current practice, knowledge and understanding of fertility preservation options, and explore the barriers to fertility preservation for AYAs with cancer.
Method: A cross sectional survey was undertaken with health professionals across Queensland involved in the clinical care of AYAs with cancer.
Results: Eighty-five responses were received from medical (n=23, 27%), nursing (n=59, 69%) and allied health staff (n= 5, 6%) from staff across major cancer centres in Queensland. Forty-four respondents (55%) routinely discussed risk of infertility with AYA patients. Most respondents provided verbal information only. Eighteen (22%) respondents routinely provided written or audio visual information. The main barriers identified in providing information and undertaking a discussion of risk of infertility were: lack of clinical skills and knowledge regarding fertility (49%); the clinical presentation of the patient and urgency for treatment (38%); time (37%), and a lack of supporting information and educational resources (36%). Most respondents rated their knowledge of specific fertility preservation options as average or poor, and 71 (85%) health professionals responded they required more knowledge about fertility preservation options.
Conclusion: These findings highlight the need for clearer referral pathways and education regarding fertility preservation for AYAs with cancer. Fertility is a great concern in this population, and post treatment, can have long term effects on quality-of-life. To provide high quality care in this domain, health professionals need access to clear guidelines, education and information.